A New Normal

I can’t find the words to describe the pressures of being responsible for my child’s care, safety, and happiness. It flips from teaching her a new song to correcting her feet as we walk to the park, to completing exercises for OT at the dinner table all in what is a seamless day. I am …

Giving Flowers

Motherhood means so many things, like the state of being a mother or having the quality and spirit of a mother. It is a sisterhood of women pouring into the souls that will be our future. It can be celebrated with so much more than flowers, brunch, and cards given with love. For me the …

Day by Day

We have been safely staying home as most of the country. I can’t say enough about how busy our home has been. Keeping Sophia safe, working from home, as well as taking care of the household has been exhausting. Yet we manage to have as many dance parties, walks in the park, and cuddle days …

Purposeful Pause

Hello! It's been a busy end of summer. I moved, started a new job, and began the back to school hustle with Sophia. Momma is tired. I did my best to get us off to a great start and work out the kinks.  I was very conscious of my limits and listened to my body …

Moment of TRUTH

Every parent deserves a break. I mean every parent does their best to keep their child safe, happy and cared for. Yet, when your child’s care turns into a 24-hours around the clock shifts alone its exhausting. Like new baby exhaustion, except when your time Is done watching your child you have to get up …

Mall Gladness

This weekend was another milestone for Sophia.  We went to the mall without her wheelchair. What an emotional experience it was. I feel incredibly proud of her, making her way down the foyer just holding my hand. I was aware of everything around us. I wanted to protect her from onlookers and people who walk …

Oh, The Places We Will GO!

Life throws curves our way daily and the choice is yours to respond radically with solutions, or in panic and despair. This happened to me this week with a situation I didn’t anticipate. I had an interview set for 5PM on Monday, the time which my daughter is usually picked up from the bus by …

Medical Advocate Blues

Excuse the delay in writing, I’ve been dealing with medical mayhem of all sorts for my daughter. From getting approved for this medicine, to getting rejected for support and care. It’s been exhausting to say the least. I know every parent taking care of a child has this responsibility and it can be exhausting. I …